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A Community-based Advance Care Planning Programme for Patients With Advanced Disease

Information source: Food and Health Bureau, Hong Kong
ClinicalTrials.gov processed this data on August 23, 2015
Link to the current ClinicalTrials.gov record.

Condition(s) targeted: Chronic Disease

Intervention: Advance care planning programme (Behavioral)

Phase: N/A

Status: Recruiting

Sponsored by: Food and Health Bureau, Hong Kong

Official(s) and/or principal investigator(s):
Helen Chan, RN PhD, Principal Investigator, Affiliation: The Nethersole School of Nursing, The Chinese University of Hong Kong
Diana Lee, RN PhD, Principal Investigator, Affiliation: The Nethersole School of Nursing, The Chinese University of Hong Kong
Carmen Chan, RN PhD, Principal Investigator, Affiliation: The Nethersole School of Nursing, The Chinese University of Hong Kong
Iris Lee, RN PhD, Principal Investigator, Affiliation: The Nethersole School of Nursing, The Chinese University of Hong Kong
Doris Leung, PhD, Principal Investigator, Affiliation: The Nethersole School of Nursing, The Chinese University of Hong Kong

Overall contact:
Helen Chan, RN PhD, Phone: 852-3943-8099, Email: helencyl@cuhk.edu.hk

Summary

Advance care planning has been recommended as an integral part of care for patients with life-limiting disease, but relevant development in Hong Kong is still in its infancy. This proposed study attempts to address this service gap by promoting advance care planning to patients with advanced disease. It is hypothesized that the proportion of patients whose end-of-life care preferences were known in the experimental group will be significantly higher than that in the control group.

Clinical Details

Official title: A Community-based Advance Care Planning Programme to Improve End-of-life Care in Patients With Advanced Disease: A Mixed-method Approach

Study design: Allocation: Randomized, Endpoint Classification: Efficacy Study, Intervention Model: Parallel Assignment, Masking: Single Blind (Outcomes Assessor), Primary Purpose: Health Services Research

Primary outcome: End-of-life care preferences

Secondary outcome:

Level of certainty about future care

Health care utilization

Detailed description: This study aims to evaluate the impacts of a community-based advance care planning programme on end-of-life care of patients with advanced disease. A mixed-method approach, including a randomized controlled trial and qualitative interviews, will be used. Participants in the experimental group will received a structured advance care planning programme delivered by a trained facilitator. It includes an educational component, reflection and a family meeting.

Eligibility

Minimum age: 18 Years. Maximum age: N/A. Gender(s): Both.

Criteria:

Inclusion Criteria:

- aged 18 or above

- meet one of the three triggers for supportive /palliative care as suggested in the

Gold Standards Framework

- living at home

- being communicable

Exclusion Criteria:

- mentally incompetent

- cannot nominate a family carer

- have already signed an advance directive

- have been referred to palliative care service

Locations and Contacts

Helen Chan, RN PhD, Phone: 852-3943-8099, Email: helencyl@cuhk.edu.hk

Haven of Hope Hospital, Hong Kong, Hong Kong; Recruiting
KS Chan, MBBS, Principal Investigator
Jeffrey Ng, MBBS, Sub-Investigator
LN Chan, RN MSc MBA, Sub-Investigator
PS Ko, RN MN, Sub-Investigator
Additional Information

Starting date: March 2014
Last updated: March 4, 2015

Page last updated: August 23, 2015

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